Grace

There was a meme that I recently came across that jokingly read, “If I’m ever murdered or kidnapped, please don’t make up lies about me. I do not light up a room. Everyone doesn’t want to be my [...]

Next week marks four years from when I first shared my son’s diagnosis with the world. As we approach this milestone, the emotion I felt around this time weighs on me. Remembering the [...]

It’s true that food prep makes life easier for parents but, when you’re parenting a child with any chronic condition or special need, food prep is a necessity. It is officially Summer, which [...]

“I can’t believe that almost 30,000 people just read the words ‘Tuberous Sclerosis’! You are spreading awareness! Thank you so much!” This was the first direct message that was sent to me [...]

When your child is diagnosed with a life-threatening illness, or any chronic condition, the world as you know it shatters.