5 Parenting Affirmations to Live By
Perhaps I am just in the middle of a really hard season, or maybe the weight of being the mother of a child with a rare genetic disease is taking a toll on me? Either way, life seems to be moving [...]
Navigating Parenthood When Your Child Has a Rare Genetic Disease
What I had envisioned to be a relaxing soak after a really hard week, turned into a sob-fest. The ten minutes of peace, alone in my tub, was the only solo time I had to myself; the only time I [...]
My Son Was Born With Tuberous Sclerosis – Now What?
Next week marks four years from when I first shared my son’s diagnosis with the world. As we approach this milestone, the emotion I felt around this time weighs on me. Remembering the [...]
Meal Prep Must-Haves for Families of Kids Living with a Chronic Illness
It’s true that food prep makes life easier for parents but, when you’re parenting a child with any chronic condition or special need, food prep is a necessity. It is officially Summer, which [...]
Spread Awareness Like Wildflowers
“I can’t believe that almost 30,000 people just read the words ‘Tuberous Sclerosis’! You are spreading awareness! Thank you so much!” This was the first direct message that was sent to me [...]